Welcome
Multiple Myeloma Ireland is the only charitable organisation in Ireland focused exclusively on supporting patients, families and carers with Multiple Myeloma and related conditions. Multiple Myeloma Ireland is also a member of Myeloma Patients Europe (MPE), the umbrella organisation of multiple myeloma and AL amyloidosis patient groups and associations from across Europe.
Although myeloma is the second most common form of blood cancer, it only represents 1% of cancers. On average 384 patients in Ireland are diagnosed with Multiple Myeloma each year – based on the most recent figures published by the National Cancer Register. Many people have never heard of myeloma, so being given a diagnosis of myeloma can be quite alarming. You and your family may have a lot of questions about myeloma: how it may affect you, what treatments you may have, and how much or how little will change in what you are able to do. Information plays an important role in helping come to terms with a myeloma diagnosis and understanding options around treatment, care and living well with myeloma.
As a voluntary organisation we do everything we can to help patients, and their support network, to get a better understanding of their disease, and to ensure all patients get access to the best possible information, support, care, and treatment. Raising awareness about Multiple Myeloma and related conditions is core to what we do, and it is a strategic imperative for our organisation.
We don’t just provide resources and support for patients, but also for healthcare professionals – offering grants to support research to develop new treatments and improvements in clinical practice.
From diagnosis through to common complications, Multiple Myeloma Ireland is here to help you find all the information you need to help you better understand myeloma and related conditions.
As part of our fundraising and awareness campaign we are delighted to be able to share with you details of the Third Multiple Myeloma Ireland ‘Wild Myeloma Way Cycle‘ that will take place on September 15th and 16th this year. Participants will include Health Care Professionals, Multiple Myeloma Patients and families, Pharmaceutical industry members, and the general public. It promises to be an exhilarating, but challenging event, dedicated to raising awareness about Multiple Myeloma.
2023 Wild Myeloma Way Cycle
Save The Date
Dates for our 2023 Wild Myeloma Way Cycle are Friday 15 September and Saturday 16 September 2023.
Cyclists wishing to partake in the cycle are required to register online and pay an initial €150 registration fee. We then request that participants raise a minimum of €500 (this includes initial registration fee). Obviously, anything in excess of this would be fantastic!
Please note that the €500 raised by participants includes your hotel accommodation on each night of the cycle, food and snacks throughout to include Celebration Dinner after the cycle on Saturday 16th September. To register for this event, please log onto: www.multiplemyelomaireland.org or contact info@eliteevents.ie if you have any other queries.
Please click the button below to register your interest in our 2023 Wild Myeloma Way Cycle.
2023 Current News
MMI Patient and Carer Information Day – 12th May 2023 Galway.
Thanks to everyone who made our 2023 Patient and Carer Day a success in the Galway Bay Hotel, Salthill, Galway. To review videos of the talks, please click the review video button below.
Donate to help support MMI
All donations we receive go directly to providing support services and information for those affected by multiple myeloma.
Thanks to the support of people like you we can continue to provide this service free of charge to patients & their families.
A Big Thanks To Fundraisers Sarah & Ann Fleming
Big Congratulations To All Who Took Part In Our 2022 Cycle
2022 Myeloma Cycle
Congratulations to all who took part in our 2022 wild myeloma way cycle. It was terrific fun and we look forward to another great event in 2023.
Some of those who took part…
Shane Ryan
Driving greater awareness of Multiple Myeloma
For many years I have worked in an organisation that is committed to researching and providing treatments for MM patients. This is a great responsibility and challenge. I’m doing this cycle to drive greater awareness of Multiple Myeloma and support the great work that MMI do to support patients, families and carers ensuring the best possible access to information, education, support, care and treatment.
Mary Kelly
Raising awareness on behalf of the Midlands Multiple Myeloma patients
Mary is Haematology ANP at Midland Regional Hospital, Tullamore. She is a founding member of MMI and is Midlands Myeloma Support Group leader. Mary is taking part again in the cycle on behalf of the Midlands patients to raise awareness and funds towards MMI activities.
Oonagh MacMahon
In memory of mam
In 2019, we both did the cycle while our mum was very terminal with Multiple Myeloma, she died 2 months later, but was incredibly proud of the cycle. The whole event was so therapeutic for us both, and although at the time, we were both emotionally and psychologically drained, the support and camaraderie we encountered was unbelievable. Anyway, we’re doing it this year for mum, and for all those who are battling with this awful cancer.
Mum was from West Clare and we spent a lot of time in Spanish Point, so this will be extra special for us.
Amy O’Shaughnessy
In support of my brother Richard
I’m doing the Wild Myeloma Way in support of my brother Richard who was diagnosed in February this year. Within 24 hours he went from a regular life to having to stop work and receive treatment. At the time of the spin, all going to plan, he will have had his stem cell transplant in Galway. Fingers crossed he will be on the mend and looking forward to a bright future. It’s great to know that he’ll be able to avail of the services and support of MMI.
I look forward to joining my ‘multiple’ friends in September for our wild adventure.
Patient Recruitment
We Want You
Flyer Cancer Survivorship Study
Press Release
(CAR-T), CARTITUDE-5, Feb 1st 2023
MMI would like to inform patients that a new myeloma clinical trial for Janssen’s chimeric antigen receptor T-cell therapy (CAR-T), CARTITUDE-5, will begin in St James’s Hospital in Dublin in the new year. The trial is for people with newly diagnosed multiple myeloma for whom ASCT is not planned as an initial therapy.
Geraldine Walpole, Chairperson of Multiple Myeloma Ireland, said: “This is a welcome development for newly diagnosed multiple myeloma patients in Ireland. Participation in the CARTITUDE-5 clinical trial may provide access to a much-needed cutting-edge treatment option. We hope this trial will ultimately contribute towards better treatment regimens for patients living with multiple myeloma.”
Please click below button for more information on the trial
We Want You
You are invited to take part in an online survey
Award Winning Podcast
MMI is delighted to announce our Living with Multiple Myeloma Podcast Series has been awarded the Bullseye Award at the Irish Podcast Awards 2022. The Ceremony was held on September 16th 2022 at Liberty Hall, Dublin.
Our podcast series provides information and support for Irish Multiple Myeloma patients and their families. Each year in Ireland 350 new patients are diagnosed and over 2000 patients are living with Multiple Myeloma.
The series of 13 podcasts provides an overview of the patient journey, treatment options and supports available to patients and their families.
MMI are grateful to our host Maire Teresa Ni Cheallaigh, Greg @ Fuzion Communications and all our fantastic interviewees of patients and healthcare professionals for their contributions and support.
2023 Podcast Survey
We Want Your Feedback
To help us learn more about how helpful you have found our podcast series and to inform further podcast episodes, we’ve launched a short survey. If you have a few minutes, please complete it by click the button bleow:
The survey will close on Friday, 24th March 2023.