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Support Groups

Midlands Myeloma Support – Co Offaly

Midlands support group take a break for summer

The Midlands Myeloma Support Group host monthly meetings on the last Monday of every month (except Bank Holidays) from 19:30-21:00.

catch up after summer break and celebrations of Golden Jubilee for one of our members – photos to follow

Plans for next meetings
Midland support group returning after summer break for Sept meeting Monday 25th at Dochas with update from summer events, support group leaders weekend with Myeloma UK and plans for the winter months.


Our meeting venue is the Dochas Cancer Support Centre, Tullamore, Co Offaly.

Our meetings are co-ordinated by Mary Kelly Advanced Nurse Practitioner in Haematology for the Midland Regional Hospitals.

All Multiple Myeloma patients’ family and friends are welcome. Patients and their families attend from the Midlands and around Ireland.

Each month we send our monthly letter informing patients of the meeting and events. We have many patients from around Ireland who are unable to attend meetings, however we keep them updated via our newsletter.

If you would like to be added to our mailing list please contact us

email maryb.kelly@hse.ie
Phone: Mary on 0867804007.
Our monthly meetings

Over the past few months we have had a busy schedule with invited speakers on several topics including
Dorothy Stuart Irish Cancer Support Group Co Coordinator
Theresa Kelly Community Welfare Officer – Information on entitlements
Dr G Crotty Consultant Haematologist – Update on Myeloma Management
Angela Forde Counsellor and Myeloma patient

Social events

We have also had a very enjoyable social gathering including
Lunch at the Grand Hotel, Moate & Belvedere House and Gardens, Mullingar
Walks in Lough Borra and Birr Castle

Our social gatherings are open to all.

How to help:

We need your help to ensure we are there to support patients and their families. Please help fund raise and increase awareness of our support systems

Mid-West Myeloma Support Group – Limerick

Our Support Group was set up in September 2014. There are now about 40 members ranging from people who have been living with Myeloma for more than 14 years, to those who recently learnt they have the condition.

Where and when does the group meet?
We meet in the Mid-West Support Centre (details below), on the second Monday of each month:
September – March meetings are 10.30 am -12.30 pm. April – May meetings are 7.00 pm to 9.00 pm.
We have two annual social events: one in June before the summer break, and another in December.

What are the group’s aims?
 We aim to provide a ‘safe space’ in which people can talk about their experience of Myeloma.
 Confidentiality is one of our guidelines – so members agree that what is said within the group is not shared with others who are not members.
 Another group aim is to give accurate information and advice about Myeloma: we can help you directly by giving you verbal and written information, as well as advising on internet sites recommended by Irish Consultants.

We invite speakers on various topics of interest members have suggested, a few times a year – past recent examples are: New Developments in Myeloma Treatments, the Patient Advocacy Service, Nutrition, Diet, and feedback from Conferences on Myeloma.
 To keep you informed – we post/email members a monthly Newsletter with events of the last meeting, new information and upcoming events.
 To vary our activities – we hold some social events, and fundraisers too: recent examples are a Fun Run, a Cake and Plant sale; and for our Summer outing, a boat trip, and a visit to Birr Castle.

Who comes to the group?
Many members of the group have Myeloma themselves. Partners, older/adult children, and close friends also find coming to meetings helpful. Some of us joined the group soon after we were diagnosed, others at a later stage. Everyone’s experience is different, but many factors are shared.
Most people value being able to meet and talk with others who have Myeloma, both for support and advice, and friendship. Numbers attending vary, but about seven/eight people is usual.

Is anyone from the Healthcare Team involved?
We are a patient-led group, with welcome support from a small group of specialist nurses. We have got to know them well, and one of them often attends our meetings: they can answer questions about Myeloma individually, or for the whole group. Cooperation between us helps ensure the information we give is accurate and relevant.

What if I’m not feeling up to coming?
Those of us who are patients have all been through difficult treatment, and know what it’s like feeling too tired/low to do much at all. So people just come and join us when they feel able. Also, as we want to avoid passing on infections (which we are likely to pick up due to our low immune-systems), if we have an infection such as ‘flu or a bad cough/cold, we wait to come to meetings until we’re better.
Please feel free to get in touch with us at any time (including the summer): see numbers/emails below.
We’ll look forward to talking to you.

To find out more, contact:

Nicky (Group Coordinator) on 089 483 0576 or email: limerickmyelomagroupcontact@gmail.com
Or: Maria (Support Centre Administrator ) on 061 485163 (09.00 am to 17.00) or email: mariakeane@hse.ie
for information about the group, and directions to the Mid-West Support Centre. (The Centre is on the right as
you enter the Oncology and Haematology Day Ward car park at the University Hospital Limerick).

Also, see
www.midwestcancercentre.ie (You can also drop in to the Centre on any weekday for a cup of tea/coffee.)

Arc Support Group Dublin

The Mission of the ARC Multiple Myeloma Support Group is to create support and share hope through knowledge and personal experience. We provide an ongoing resource for information and education, and promote awareness and advocacity for Multiple Myeloma survivors, caregivers, family, friends and healthcare providers, in order to live longer, stronger and more fulfilling lives.

Next support events taking place.

Thursday 4th February
Thursday. 3rd. March
Thursday. 7th. April
Thursday. 5th. May
Thursday. 2nd June

from 11am to 12.30pm at Arc House 559 South Circular Road Rialto Dublin

No meeting January July or August.

Phone 01-7078880

Patients, Carers, Family and Friends all Welcome.
Why not join us for a Cuppa and a Chat!
We hope to see you there!
Phone:087 997 0832

Meetings held in ARC house,
559 South Circular Road Dublin 8
1st Thursday of month

How to help:

We need your help to ensure we are there to support patients and their families. Please help fund raise and increase awareness of our support systems

Multiple Myeloma Support Group Northwest

Information and Support for Patients, Families and Carers

We meet on the last Monday of each month in Sligo Cancer Support Centre.

Monthly Multiple Myeloma Support Meeting for Patients, Families, Carers and Friends.

Venue: Sligo Cancer Support Centre, 44 Wine St., Sligo
Group facilitator: Peigin Doyle.

Email: mmspnorthwest@gmail.com

Patients and ex-patients, family and friends all welcome.

Drogheda Patient Support Group

Drogheda Multiple Myeloma Patient Support Group.
c/o Gary Kelly Cancer Center.

Venue: Georges Street.
Co Louth

Group facilitator: Aileen Emery.

Phone:041- 9805100
Email: info@gkcancersupport.com
Website: www.gkcancersupport.com

Meeting times and dates..
1st Thursday of the month (except July and August )
3-30 pm to 5-00 pm

Wexford Multiple Myeloma Support Group

Information and Support for Patients affected by a diagnosis

Wexford Multiple Myeloma Patient Support Group.

Venue: Hope Cancer Support Centre
22 Weafer Street
Co Wexford.

Group facilitator: Bernie Kirwan, Support Nurse

Phone:053 9238555
Email: Bernie@hopesupportcentre.ie
Website: www.hopesupportcentre.ie

The Centre will provide a trained facilitator to help ensure continuity.

Next Meeting; Tuesday 6th March at 10.30am

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Additional Myeloma Resources/Links


Meet the Team behind Myeloma Ireland

Patrick Hayden

Patrick Hayden Chair

Mary Kelly

Mary Kelly Vice-Chair

Maura Dowling

Maura Dowling Secretary

Liam McManuse

Liam McManuse Treasurer

Anne Fitzgerald

Anne Fitzgerald Assistant Treasurer

Peter O’Gorman

Peter O’Gorman

Joe O’Brien

Joe O’Brien

John Quinn

Mervyn Byrne

Helen Brennan