Covid19: Impact Survey

an international online survey to determine the impact of the COVID-19 pandemic on caregivers and patients with myeloma and precancerous conditions such as MGUS and MBL.

Take Covid19 Impact Survey

Clinical trials and novel drugs

Patient involvement is the cornerstone of myeloma research. Myeloma patients can help move research forward by taking part in clinical trials and donating blood and bone marrow samples so these can be banked and used for research purposes.

The key goals of current myeloma research include:

• Giving each patient the best treatment for their disease-specific and individual needs
Overcoming resistance to treatment
• Developing better drugs with fewer side-effects
• Identifying new targets for treatment
• Preventing the onset and progression of myeloma
• Finding a cure

Your doctor may well talk to you about taking part in a clinical trial. Clinical trials are planned research investigations in which patients take part. You can find out more in our Clinical Studies Infoguide or Frequently asked questions.

You can find out more about the ICORG Clinical Trial Network and active trials in our Research pages.

Novel treatments

There is a promising pipeline of new anti-myeloma treatments being looked at in clinical trials, including Kyprolis® (carfilzomib), Imnovid® (pomalidomide), daratumumab, elotuzumab, ixazomib (MLN 9708), panobinostat.


Additional Myeloma Resources/Links


Meet the Team behind Myeloma Ireland

Patrick Hayden

Patrick Hayden Chair

Mary Kelly

Mary Kelly Vice-Chair

Maura Dowling

Maura Dowling Secretary

Liam McManuse

Liam McManuse Treasurer

Anne Fitzgerald

Anne Fitzgerald Assistant Treasurer

Peter O’Gorman

Peter O’Gorman

Joe O’Brien

Joe O’Brien

John Quinn

Mervyn Byrne

Helen Brennan