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Support Groups

Midlands Myeloma Support – Co Offaly

The Midlands Myeloma Support Group host monthly meetings on the last Monday of every month (except Bank Holidays) from 19:30-21:00.

catch up after summer break and celebrations of Golden Jubilee for one of our members – photos to follow

Plans for next meetings
Midland support group returning after summer break for Sept meeting Monday 25th at Dochas with update from summer events, support group leaders weekend with Myeloma UK and plans for the winter months.

General

Our meeting venue is the Dochas Cancer Support Centre, Tullamore, Co Offaly.

Our meetings are co-ordinated by Mary Kelly Advanced Nurse Practitioner in Haematology for the Midland Regional Hospitals.

All Multiple Myeloma patients’ family and friends are welcome. Patients and their families attend from the Midlands and around Ireland.

Each month we send our monthly letter informing patients of the meeting and events. We have many patients from around Ireland who are unable to attend meetings, however we keep them updated via our newsletter.

If you would like to be added to our mailing list please contact us

email maryb.kelly@hse.ie
Phone: Mary on 0867804007.
Our monthly meetings

Over the past few months we have had a busy schedule with invited speakers on several topics including
Dorothy Stuart Irish Cancer Support Group Co Coordinator
Theresa Kelly Community Welfare Officer – Information on entitlements
Dr G Crotty Consultant Haematologist – Update on Myeloma Management
Angela Forde Counsellor and Myeloma patient

Social events

We have also had a very enjoyable social gathering including
Lunch at the Grand Hotel, Moate & Belvedere House and Gardens, Mullingar
Walks in Lough Borra and Birr Castle

Our social gatherings are open to all.

How to help:

We need your help to ensure we are there to support patients and their families. Please help fund raise and increase awareness of our support systems

Mid-West Myeloma Support Group – Limerick


When and why did the group begin?

As there was no local Support Group we decided to set one up and see if people found it helpful. Our first meeting was in September 2014, and there are now over 40 members ranging from people who have been living with Myeloma for more than 14 years, to those who only recently learnt they have the condition. It seems to affect everyone differently, but many factors are shared. We know from personal experience what it is like to be told you have Multiple Myeloma – many of us had never heard of it before, and for most it is a very hard time.

Who can come to the group?
The group is as inclusive as possible, so while many members have Myeloma themselves, others such as wives, husbands, partners, older/adult children, as well close friends, often find coming to the group helpful, and some attend in their own right, or if their relative is unable to do so. Some of us joined soon after we were diagnosed, others at a later stage. We value being able to meet and talk with others who have Myeloma.

What are the aims of the group?
We aim to provide a ‘safe space’ in which people can talk about their experience of Myeloma, and support, and get to know each other. Confidentiality is one of our guidelines – what is said in the group is not shared with others outside. Another group aim is to access accurate information and advice about living well with Myeloma. We have invited speakers on various topics of interest – past examples are: Nutrition, Diet, Feedback from the 2014 American Society of Haematology Conference on Myeloma, and the Patient Advocacy Service. We also have Social events during the year, such as a meal out or a boat trip.

How is the group run?
We are a patient-led group, with welcome support from the Healthcare Team, one of whom generally attends meetings. They help enable us to ensure the information we give is accurate, and can answer questions about Myeloma both individually or for the whole group.

What if I’m not feeling up to coming?
Numbers coming to the group vary from one month to the next. We have all been through difficult treatment, and understand feeling too tired and low to do much at all. So just come when you feel like it. We have a monthly Newsletter that is sent out to everyone, to keep people in touch with any information/upcoming events etc. Myeloma often means having a low immune system and often catching infections easily – so if anyone has an infection, such as a bad cough/cold they try to stay away from meetings till they have recovered, to avoid passing it on.

Where and when do you meet?

Meetings are relaxed and informal, and are held at the Support Centre (details below). They are on the second Tuesday of the month: from September to April at 10 am -12 pm, and when the days lengthen, between April and June from 7.30 pm to 9.30pm. We have a summer break for July and August during which you can still contact us using the numbers/emails below.

You will be very welcome to come along to the group – we look forward to meeting you.

To find out more:
Tel: Nicky (Group Coordinator) on 089 483 0576 or email: limerickmyelomagroupcontact@gmail.com
Or : Maria (Support Center Administrator ) on 061 485163 (09.00 am to 17.00) for information about the group, and for directions to the Mid-West Cancer Support Centre, or see www.midwestcancercentre.ie (On the right as you enter the Oncology and Haematology Day Ward car park at the University Hospital Limerick)

We need your help to ensure we are there to support patients and their families. Please help fund raise and increase awareness of our support systems

Arc Support Group Dublin

The Mission of the ARC Multiple Myeloma Support Group is to create support and share hope through knowledge and personal experience. We provide an ongoing resource for information and education, and promote awareness and advocacity for Multiple Myeloma survivors, caregivers, family, friends and healthcare providers, in order to live longer, stronger and more fulfilling lives.

Next support events taking place.

Thursday 4th February
Thursday. 3rd. March
Thursday. 7th. April
Thursday. 5th. May
Thursday. 2nd June

from 11am to 12.30pm at Arc House 559 South Circular Road Rialto Dublin

No meeting January July or August.

Phone 01-7078880

Patients, Carers, Family and Friends all Welcome.
Why not join us for a Cuppa and a Chat!
We hope to see you there!
Phone:087 997 0832
Email mervynb11@gmail.com

Meetings held in ARC house,
559 South Circular Road Dublin 8
1st Thursday of month

How to help:

We need your help to ensure we are there to support patients and their families. Please help fund raise and increase awareness of our support systems

Multiple Myeloma Support Group Northwest

Information and Support for Patients, Families and Carers

We meet on the last Monday of each month in Sligo Cancer Support Centre.

Monthly Multiple Myeloma Support Meeting for Patients, Families, Carers and Friends.

Venue: Sligo Cancer Support Centre, 44 Wine St., Sligo
Group facilitator: Peigin Doyle.

Email: peigindoyle@gmail.com

Patients and ex-patients, family and friends all welcome.

Drogheda Patient Support Group

Drogheda Multiple Myeloma Patient Support Group.
c/o Gary Kelly Cancer Center.

Venue: Georges Street.
Drogheda
Co Louth

Group facilitator: Aileen Emery.

Phone:041- 9805100
Email: info@gkcancersupport.com
Website: www.gkcancersupport.com

Meeting times and dates..
1st Thursday of the month (except July and August )
3-30 pm to 5-00 pm

The next meetings is scheduled: for 3rd May – 3-30 pm to 5-00 pm.

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Additional Myeloma Resources/Links

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Meet the Team behind Myeloma Ireland

Patrick Hayden

Patrick Hayden Chair

Mary Kelly

Mary Kelly Vice-Chair

Maura Dowling

Maura Dowling Secretary

Liam McManuse

Liam McManuse Treasurer

Anne Fitzgerald

Anne Fitzgerald Assistant Treasurer

Peter O’Gorman

Peter O’Gorman

Joe O’Brien

Joe O’Brien

John Quinn

Mervyn Byrne

Helen Brennan